A quality improvement collaborative to improve pediatric primary care genetic services

Michael L. Rinke, Amy Driscoll, Natalie Mikat-Stevens, Jill Healy, Elizabeth Colantuoni, Abdallah F. Elias, Beth Pletcher, Ruth S. Gubernick, Ingrid Larson, Wendy K. Chung, Beth A. Tarini

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

OBJECTIVE: To investigate if a national pediatric primary care quality improvement collaborative (QIC) could improve and sustain adherence with process measures related to diagnosis and management of children with genetic disorders. METHODS: Thirteen practices in 11 states from the American Academy of Pediatrics' Quality Improvement Innovation Networks participated in a 6-month QIC that included regular educational opportunities, access to genetic professionals, and performance feedback. The QIC identified 11 aims related to improving diagnosis and management of children with genetic disorders. The practices evaluated adherence by reviewing patient records at baseline, monthly for 6 months (active improvement period), and then once 6 months after the QIC's conclusion to check for sustainability. Random intercept binomial regression models with practice level random intercepts were used to compare adherence over time for each aim. RESULTS: During the active improvement period, statistically significant improvements in adherence were observed for 4 of the 7 aims achieving minimal data submission levels. For example, adherence improved for family histories created/maintained at health supervision visits documenting all components of the family history (6% vs 60%, P < .001), and for patients with specific genetic disorders who received recommended care (58% vs 85%, P < .001). All 4 of these aims also demonstrated statistically significant improvements during the sustainability period. CONCLUSIONS: A national QIC reveals promise in improving and sustaining adherence with process measures related to the diagnosis and management of genetic disorders. Future research should focus on patient outcome measures and the optimal number of aims to pursue in QICs.

Original languageEnglish (US)
Article numbere20143874
JournalPediatrics
Volume137
Issue number2
DOIs
StatePublished - Feb 1 2016

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Genetic Services
Quality Improvement
Inborn Genetic Diseases
Primary Health Care
Pediatrics
Process Assessment (Health Care)
Statistical Models
Patient Compliance
Outcome Assessment (Health Care)
Health

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

Cite this

Rinke, M. L., Driscoll, A., Mikat-Stevens, N., Healy, J., Colantuoni, E., Elias, A. F., ... Tarini, B. A. (2016). A quality improvement collaborative to improve pediatric primary care genetic services. Pediatrics, 137(2), [e20143874]. https://doi.org/10.1542/peds.2014-3874
Rinke, Michael L. ; Driscoll, Amy ; Mikat-Stevens, Natalie ; Healy, Jill ; Colantuoni, Elizabeth ; Elias, Abdallah F. ; Pletcher, Beth ; Gubernick, Ruth S. ; Larson, Ingrid ; Chung, Wendy K. ; Tarini, Beth A. / A quality improvement collaborative to improve pediatric primary care genetic services. In: Pediatrics. 2016 ; Vol. 137, No. 2.
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Rinke, ML, Driscoll, A, Mikat-Stevens, N, Healy, J, Colantuoni, E, Elias, AF, Pletcher, B, Gubernick, RS, Larson, I, Chung, WK & Tarini, BA 2016, 'A quality improvement collaborative to improve pediatric primary care genetic services', Pediatrics, vol. 137, no. 2, e20143874. https://doi.org/10.1542/peds.2014-3874

A quality improvement collaborative to improve pediatric primary care genetic services. / Rinke, Michael L.; Driscoll, Amy; Mikat-Stevens, Natalie; Healy, Jill; Colantuoni, Elizabeth; Elias, Abdallah F.; Pletcher, Beth; Gubernick, Ruth S.; Larson, Ingrid; Chung, Wendy K.; Tarini, Beth A.

In: Pediatrics, Vol. 137, No. 2, e20143874, 01.02.2016.

Research output: Contribution to journalArticle

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AU - Rinke, Michael L.

AU - Driscoll, Amy

AU - Mikat-Stevens, Natalie

AU - Healy, Jill

AU - Colantuoni, Elizabeth

AU - Elias, Abdallah F.

AU - Pletcher, Beth

AU - Gubernick, Ruth S.

AU - Larson, Ingrid

AU - Chung, Wendy K.

AU - Tarini, Beth A.

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N2 - OBJECTIVE: To investigate if a national pediatric primary care quality improvement collaborative (QIC) could improve and sustain adherence with process measures related to diagnosis and management of children with genetic disorders. METHODS: Thirteen practices in 11 states from the American Academy of Pediatrics' Quality Improvement Innovation Networks participated in a 6-month QIC that included regular educational opportunities, access to genetic professionals, and performance feedback. The QIC identified 11 aims related to improving diagnosis and management of children with genetic disorders. The practices evaluated adherence by reviewing patient records at baseline, monthly for 6 months (active improvement period), and then once 6 months after the QIC's conclusion to check for sustainability. Random intercept binomial regression models with practice level random intercepts were used to compare adherence over time for each aim. RESULTS: During the active improvement period, statistically significant improvements in adherence were observed for 4 of the 7 aims achieving minimal data submission levels. For example, adherence improved for family histories created/maintained at health supervision visits documenting all components of the family history (6% vs 60%, P < .001), and for patients with specific genetic disorders who received recommended care (58% vs 85%, P < .001). All 4 of these aims also demonstrated statistically significant improvements during the sustainability period. CONCLUSIONS: A national QIC reveals promise in improving and sustaining adherence with process measures related to the diagnosis and management of genetic disorders. Future research should focus on patient outcome measures and the optimal number of aims to pursue in QICs.

AB - OBJECTIVE: To investigate if a national pediatric primary care quality improvement collaborative (QIC) could improve and sustain adherence with process measures related to diagnosis and management of children with genetic disorders. METHODS: Thirteen practices in 11 states from the American Academy of Pediatrics' Quality Improvement Innovation Networks participated in a 6-month QIC that included regular educational opportunities, access to genetic professionals, and performance feedback. The QIC identified 11 aims related to improving diagnosis and management of children with genetic disorders. The practices evaluated adherence by reviewing patient records at baseline, monthly for 6 months (active improvement period), and then once 6 months after the QIC's conclusion to check for sustainability. Random intercept binomial regression models with practice level random intercepts were used to compare adherence over time for each aim. RESULTS: During the active improvement period, statistically significant improvements in adherence were observed for 4 of the 7 aims achieving minimal data submission levels. For example, adherence improved for family histories created/maintained at health supervision visits documenting all components of the family history (6% vs 60%, P < .001), and for patients with specific genetic disorders who received recommended care (58% vs 85%, P < .001). All 4 of these aims also demonstrated statistically significant improvements during the sustainability period. CONCLUSIONS: A national QIC reveals promise in improving and sustaining adherence with process measures related to the diagnosis and management of genetic disorders. Future research should focus on patient outcome measures and the optimal number of aims to pursue in QICs.

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Rinke ML, Driscoll A, Mikat-Stevens N, Healy J, Colantuoni E, Elias AF et al. A quality improvement collaborative to improve pediatric primary care genetic services. Pediatrics. 2016 Feb 1;137(2). e20143874. https://doi.org/10.1542/peds.2014-3874