TY - JOUR
T1 - Partnering to Increase Colorectal Cancer Screening
T2 - Perspectives of Community Advisory Board Members
AU - Rawl, Susan M.
AU - Bailey, Sandra
AU - Cork, Beatrice
AU - Fields, Matthew
AU - Griffin, Thomas
AU - Haunert, Laura
AU - Kline, Judy
AU - Krier, Connie
AU - Lagunes, Juan
AU - Lambert, Ruth L.
AU - Malloy, Caeli
AU - Quick, Jack
AU - Shedd-Steele, Rivienne
AU - Strom, Sylvia
AU - Carter-Harris, Lisa
N1 - Publisher Copyright: © The Author(s) 2021.
PY - 2021/10
Y1 - 2021/10
N2 - The Patient-Centered Outcomes Research Institute (PCORI) defines engagement in research as the meaningful involvement of patients, caregivers, clinicians, insurers, and others throughout the entire research process—from planning to conducting the study to disseminating study results. The purposes of this paper are to (a) describe methods used to engage community members across the various phases of a PCORI-funded comparative effectiveness trial to increase colorectal cancer screening; and (b) report results of qualitative and quantitative evaluations of community advisory board members’ experiences on this project. Decisions to join and stay engaged with the study included feeling valued and appreciated, being compensated, the opportunity to contribute to research based on their skills and expertise, and being committed to colon cancer prevention efforts. Challenges identified by advisory board members included the significant time commitment, transportation, and meeting location. Lessons learned and guidance for researchers committed to patient and community engagement are described.
AB - The Patient-Centered Outcomes Research Institute (PCORI) defines engagement in research as the meaningful involvement of patients, caregivers, clinicians, insurers, and others throughout the entire research process—from planning to conducting the study to disseminating study results. The purposes of this paper are to (a) describe methods used to engage community members across the various phases of a PCORI-funded comparative effectiveness trial to increase colorectal cancer screening; and (b) report results of qualitative and quantitative evaluations of community advisory board members’ experiences on this project. Decisions to join and stay engaged with the study included feeling valued and appreciated, being compensated, the opportunity to contribute to research based on their skills and expertise, and being committed to colon cancer prevention efforts. Challenges identified by advisory board members included the significant time commitment, transportation, and meeting location. Lessons learned and guidance for researchers committed to patient and community engagement are described.
KW - community advisory board
KW - community engagement
KW - comparative effectiveness trial
KW - evaluation
KW - patient engagement
UR - http://www.scopus.com/inward/record.url?scp=85100978922&partnerID=8YFLogxK
U2 - 10.1177/0193945921993174
DO - 10.1177/0193945921993174
M3 - Article
C2 - 33586632
SN - 0193-9459
VL - 43
SP - 930
EP - 938
JO - Western Journal of Nursing Research
JF - Western Journal of Nursing Research
IS - 10
ER -